Wednesday, October 21, 2020

Surgical Scar Photos

 Here are some photos of the scars.  As they heal and I get the bandages changed again, I will update this page. Warning - these are graphic, if you don't like blood or have a weak stomach, then don't look! 


Day of surgery:

This is where I mostly feel the pain, the surgeon marked it in permanent marker before the surgery



Straight after surgery
straight after surgery


3 days after surgery:


3 days after the surgery
3 days after the surgery



1 week after surgery - changing the bandages:


1 week after the surgery - changing the bandages

1 week after the surgery - changing the bandages


Videos of my surgery

 Here are some videos of the surgery - they show before and after.  In the before videos, you can see the ribs that are mobile, and afterwards see them sutured together to stabilise them.  Warning, don't watch them if you don't like blood or have a weak stomach. 


First incision - 8th rib repair BEFORE






First incision - 8th rib repair AFTER






Second incision - 9th rib repair BEFORE



Second incision - 9th rib repair AFTER



Tuesday, October 20, 2020

Information and Resources for Slipping Rib Syndrome

 I have had quite a few messages since a media article came out about me.  Messages from people who have slipping rib syndrome themselves, and messages from people who have the same symptoms but didn't realise what it was.  I's so glad that I've managed to help so many people find out how to diagnose this condition, and ways to treat it.  I have decided to compile a list of references below, to help people find out more about slipping rib syndrome.  If you have any questions, please don't hesitate to contact me. 


What is Slipping Rib Syndrome?

Slipping rib syndrome is when the cartilage and the ribs slip away/detach from each other (usually the false ribs - ribs 8-12).  With the cartilage no longer holding the rib in place, the tip of the rib is slipping, stabbing the insides and causing pain and inflammation. There are a lot of nerves in that area which makes it a lot more painful.

Common Symptoms:

  • Intense pain in the lower chest or upper abdomen around the costal margin, mostly at the height of the 8th, 9th and 10th ribs (false ribs)
  • Reproduction of the pain by pressing the tender spot 
  • Clicking or palpable movement of the ribs
  • Worsening of symptoms in certain positions, for most sitting down.
  • Can also be made worse by certain postures and movements; such as lying or turning in bed, rising from a chair, driving, stretching, reaching, lifting, bending, twisting the trunk, coughing, walking, or heavy lifting.
  • Can be described as a intermittent sharp stabbing pain followed by a constant monotonous pain that may last from several hours to many weeks
  • Range of severity of pain varies from being a minor nuisance, moderately severe to interfering with activities of daily living
  • May also radiate from the costochondral area to the chest or to the same level in the back.


Diagnosis

Slipping rib syndrome is difficult to diagnose because the symptoms resemble other conditions and it is widely unknown, so doctors don't know what to look for.

The hooking manoeuvre is painful but can help diagnose slipping rib syndrome. To perform this test hook your fingers under the rib margins and then move them upward and back. It will produce pain and sometimes a clicking sensation. 

Dynamic ultrasound is a good way to diagnose it, but it doesn't usually show up in regular ultrasounds, MRI, X-ray, TC bone scan etc.  It is of course good to rule other conditions out. 


Treatment and Self-Help

If your condition is not severe, training the muscles around the affected area might help and even allow you to avoid surgery

Icing helps numb the pain away and reduce swelling, best for flare ups which recently started

Heat helps calm down hardened muscles and relaxes the area

Walking and light exercise (as much as possible) helps the mind and the flow of blood

If standing is better than sitting for you, Standing desks might be an option they help you avoid sitting or other positions which will cause you pain, might be tiring at first but you will get used to it


Medications

  • NSAID's and/or paracetamol might help at first
  • Nerve pain-killers such as Gabapentin, Nortriptyline, Amitriptyline
  • CBD Oil (I haven't tried this yet, but have heard from others that it's helped)
  • Opioids such as Tramadol short-term, will yield the most pain relief, at the cost of some side effects.

There are many options, not everyone is equal, make sure you consult with your doctor.


Surgery

Not recommended option: In the past, SRS would be treated by a rib resection (removing part of the rib and/or cartilage).  This can work for some people, but for many people, it causes other long term issues and doesn't always work. 

Recommended option: Dr Adam Hansen, who works at United Hospital Center in West Virginia, USA, has created a minimally invasive repair procedure using sutures, that stabilises the rib cage.  This has changed the lives of so many people for the better.  There are surgeons all over the world who are learning this procedure now. 

Please see below for information and Resources about Dr. Hansen's Rib Suturing, minimally invasive repair 


Extra Tips

Avoid laying down all day - move around

Avoid waiting too long to get help, any pain lasting longer than 2 months is not normal

Keep trying until you find someone who can help - Avoid staying too long in one place hoping for a solution, this condition is rare most doctors have never heard of it, even a lot of thoracic surgeons, so you will be treated by common means, meaning NSAID's and rest (this won't cut it if it's severe). You have to move on until you find someone who will listen, and you get the help you need.

Don't be ashamed or feel bad for asking about a special chair or desk at work

Do not allow this to get the best of you, there is light at the end of the tunnel.  It can be emotionally draining so it's important to look after yourself emotionally, here are some tips:

  • mediation
  • mindfulness
  • keep a gratitude journal
  • focus on positive things, don't let the pain get the better of you
  • speak to a therapist

Resources and Links

Main Paper by Dr Hansen: https://drive.google.com/file/d/11wyQdxHmVrrDE8KHttalS26lVpaF_3jR/view?usp=sharing

Webinar by Dr Hansen: https://www.youtube.com/watch?v=EZDFe3fC6ck&t=4s&ab_channel=AdamHansen


Here are some other links:

https://pubmed.ncbi.nlm.nih.gov/32330472/

https://www.hindawi.com/journals/crim/2018/7484560/

https://www.physio-pedia.com/Slipping_Rib_Syndrome

If you think you may have slipping rib syndrome, there is a facebook group that is a wealth of information - have a look https://www.facebook.com/groups/783005615189562

Wednesday, October 14, 2020

Surgery update

Surgery update 2 days after the operation:

My operation on 12 October went well. The surgeon fixed 2 ribs on my left side that weren’t attached to the cartilage at the front. He had to make 2 separate incisions, one of which went through one of my top abdominal muscles so it will take a bit longer to heal.  

He saw another rib lower down that was also detached, but didn’t want to make a 3rd incision, he can always operate on it later if needed. 

The pain is pretty intense and I’ve been really tired and a bit sick from the medications, but I’m quite tough and am taking some good pain meds and anti-nausea meds so I’m getting though it. 

Staying positive has really helped me through it, and remembering that this pain is only temporary. 

The surgeon said he can operation on the other side of my ribs in a matter of weeks, it depends on how quickly I recover and how quickly I save/raise enough money to pay for the next surgery. 

Thanks everyone who has sent me their well wishes and of course a huge thank you to everyone who has helped me pay for this surgery by donating money and their time to help. I never would have been able to have this surgery if it wasn’t for your help 💖 

I’m so grateful to have so many wonderful people in my life ❤️❤️


Friday, October 9, 2020

Update: Incredible news!

 I have some incredible news about my surgery!

One week ago, a newspaper ran an article about me. They wrote about me because as most of you know, I need to have specialised surgery on my ribs, so specialised that the surgeon in West Virginia who created the procedure has only released his paper and webinar about the procedure this year. I therefore had no choice but to travel to the USA to receive the surgery. The surgery and travel to the USA etc costs around $60,000, more than I could ever afford. Because of this I have done a lot of fundraising and have organised a fundraising event (which is on tomorrow night!), and many generous friends and family have contributed so far. However, it was still going to be extremely expensive to travel to get the surgery, not to mention scary with everything happening in America right now. Then out of the blue, something incredible happened. I heard from a stranger - she told me she had read the article about me. She wanted to let me know she had just had the same surgery as I was about to get, but - it was done by a surgeon in a private hospital in Hamilton! It turned out this surgeon had watched the American surgeon’s webinar about this procedure, and it captured his interest. So he performed the surgery for the first time in NZ, just last week, and it was a success! I couldn’t believe it. I contacted the surgeon with no idea what to expect, and he asked me to come and see him for a consultation as soon as I could, so I have just travelled to Hamilton. The surgeon told me that despite him only having performed the procedure once (and just last week), he would be willing and able to operate on me, in consultation with the US surgeon. I was in shock - If this surgery goes well then I will no longer have to travel to the USA! It seems too good to be true! The surgeon then explained that he would do the procedure in two separate surgeries; one on each side with a break to recover in between. This will require 2 separate private hospital stays and procedures, so it will still be a very expensive undertaking, and will end up costing me around $55-60,000 for both operations, travel and accommodation. If this surgery doesn’t go well and I still have to travel to the USA then it will cost me a lot more, but I feel like this is a risk I need to take. I would much rather have the operation here in NZ! With all things considered, I made a decision. In just a couple of days, on the day before I was due to leave to go to the USA - I’m going to have surgery in Hamilton! I already have some of the money needed for the surgeries, but still have a lot to go to reach my goal to cover the costs involved for both operations. The fundraising show this Saturday (tomorrow) is going to be a really fun night! I hope to see you there, and want to express my huge gratitude for your generosity which is what is making it possible for me to have this essential surgery. There is also an amazing raffle prize pack from local businesses, if anyone wants tickets, please message me. It will be drawn at the show on Saturday, but you can get raffle tickets even if you aren’t going to the show. Raffle prize pack: https://www.facebook.com/NZBurlesque/photos/gm.835967600476360/3642235429122189/ Tickets to the show: https://www.eventfinda.co.nz/2020/fundraising-variety-spectacular/wellington

Second rib surgery update

 Rib Surgery Update:  The surgery I had to fix the right side of my ribs 2 days ago went really well. It hurts less than the left side I had...